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London sarcoma service

Royal National Orthopaedic Hospital NHS Trust

University College London Hospitals NHS Foundation Trust

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latest news

29 June 2017: Living with Sarcoma – ask an expert

To mark Sarcoma Awareness Week (3 – 7 July) UCLH are hosting a web chat with lead sarcoma nurse Anne McTiernan.  Anne works as a clinical nurse specialist in the sarcoma service at UCL...

25 May 2016: New website: RNOH Guide

The RNOH has launched a new website that will transform the way patients learn about their visit and treatment in hospital and improve patients' experience of their care. The RNOH Patient Guid...

08 April 2016: 'Your Voice Counts’ - Patient Involvement Event

We would like to invite patients and their representatives to join us over coffee to discuss their experiences of our service and the quality of our care. We are keen to listen and make changes where ...

08 April 2016: What's on at the UCH Macmillan Support and Information Centre?

Please see the leaflet on the following link which shows the programme of workshops, courses and groups at the UCH Macmillan Support and Information Centre from April to June 2016: ...

02 December 2015: New Consultant Oncologist

We have recently welcomed Dr Vasilios Karavasilis to the London Sarcoma Service as our new Consultant Medical Oncologist.  Vasilios is a very experienced Medical Oncologist leaving his ...

02 December 2015: New radiotherapy trial due to open in 2016:

IMRiS, a phase II study of Intensity Modulated Radiotherapy in Sarcoma Researchers at UCLH will be leading on the IMRiS trial, a UK national phase II study of intensity modulated radiotherapy (IM...

02 December 2015: Bone and soft tissue tumours App now available on android

The RNOH bone and soft tissue tumours App is now available on android.  The App is designed for healthcare professionals working in the field of musculoskeletal medicine, including radi...

08 September 2015: Sarcoma Support Group Meetings: Future Dates

The London Sarcoma Support Group is a self-help group, which aims to offer emotional and practical support in a friendly, caring and safe environment. The meetings are open to anyone affected by sarco...

New bone and soft tissue tumour app for healthcare professionals

05 August 2015: New bone and soft tissue tumour app for healthcare professionals

The histopathology and radiology teams at RNOH have just released an App for bone and soft tissue tumours. This App is designed for healthcare professionals working in the field of musc...

31 July 2015: Research funding awarded to pathology team

Sarcoma UK has awarded Professor Adrienne Flanagan, Dr Nischalan Pillay and Dr Manu Gupta £120,000 over 2 years to study the genetic alterations in nerve sheath tumours. The team will work on pa...

31 July 2015: Are you a hindquarter amputee or about to become one? Then you might like to join Club HQ…

Club HQ is a free support group for hindquarter amputees, offering information, mentoring support and annual get-togethers to share and discuss experiences. It is run by hindquarter amputees exclusiv...

26 June 2015: EURAMOS-1 results published

A paper has recently been published in the Journal of Clinical Oncology showing the first results of the EURAMOS-1 trial. EURAMOS-1 is the largest osteosarcoma study ever conducted and UCLH was...

04 February 2015: London Cancer Directory of Services

The   London Cancer directory of services is now live on the London Cancer website and can be accessed here: http://londoncancer.org/cancerprofessionals/directory-of-services/ ...

27 November 2014: New rehabilitation section on Sarcoma UK website

The therapies team at RNOH have worked with Sarcoma UK to create a rehabilitation information section for patients on the Sarcoma UK website. This was done as a direct result of feedback obt...

29 October 2014: Changes to UCLH Clinical Nurse Specialist Team

The Sarcoma team at UCLH have recently appointed two new Clinical Nurse Specialists – Rosina Donovan, Sarcoma CNS for Young Adults and Oliver McManamy, Sarcoma CNS for Adults. Anne McTiernan has...

29 October 2014: London Sarcoma Patient and Service Partnership Group

We are looking for patients and carers who have been affected by sarcoma and treated at RNOH/UCLH to join our Patient and Service Partnership Group. There are two ways which patients can get involved ...

London Sarcoma Service patient aims for Rio 2016!

21 October 2014: London Sarcoma Service patient aims for Rio 2016!

A patient treated for bone sarcoma at the London Sarcoma Service has turned his diagnosis into a positive and is aiming to compete in the Paralympic Games in 2016. Aaron Maddox was diagnosed with o...

Sarcoma Support and Information Days

19 September 2014: Sarcoma Support and Information Days

    The RNOH are holding Sarcoma Support and Information days for patients (and their carers) that have been treated for a diagnosis of sarcoma.  The dates of the next events...

Health and Wellbeing Event  28th June 2014

01 August 2014: Health and Wellbeing Event 28th June 2014

A health and wellbeing event for sarcoma patients was held on Saturday 28 th June 2014 at RNOH. Patients who were 6 to 12 months following cancer treatment were invited to participate and a total of ...

01 August 2014: IMRiS: A phase 2 study of Intensity Modulated Radiotherapy in Sarcoma

Researchers at UCLH have been awarded funding from Cancer Research UK for a national study of Intensity Modulated Radiotherapy (IMRT) in Sarcoma.  Dr Beatrice Seddon will be the lead investigator...

25 July 2014: London Sarcoma Patient and Service Partnership Group

We welcome patients, carers and relatives input into the London Sarcoma Service and ask you to join our Patient and Service Partnership Group as a patient representative. What is a Patient an...

27 September 2013: We need Sarcoma Patients to join our Patient and Service Partnership

We would like to ask patients who are or have been treated for Sarcoma at UCLH or RNOH to join our Patients and Service Partnership. This group provides the service with direct access to informatio...

23 May 2013: Improving outcomes for patients with bone sarcomas through intensity modulated radiotherapy and proton radiotherapy: optimising radiotherapy delivery, efficacy and toxicity profiles.

The most important component of curative treatment for patients with primary bone sarcomas is local therapy of the primary tumour. For Ewing’s sarcoma, surgery is the optimal local therapy, but ...

15 May 2013: Dr Harriet Holme has been awarded the BRCT Clinical Fellowship

Dr Harriet Holme was awarded a fellowship grant by the Bone Cancer Research Trust (BCRT) to investigate which genes drive the growth of osteosarcoma tumours and will submit this for a PhD qualificatio...

15 April 2013: Lung Laser Metastasectomy

Lung metastasectomy using the 1318nm Lung Laser is a cutting edge surgical technique, originally developed in Germany in the 1990’s and established in the last 15 years as the modality of choice...

Researchers scoop international award for pioneering bone cancer research

18 February 2013: Researchers scoop international award for pioneering bone cancer research

A research team, which includes several members of the London Sarcoma Service, was the first to identify a genetic mutation present in approximately half of central chondrosarcomas (the second most co...

14 December 2012: Liddy Shriver Sarcoma Initiative Donation by Texting Campaign

The Liddy Shriver Sarcoma Initiative was founded in 2003. Its mission is to improve the quality of life for people dealing with sarcomas around the world. The Initiative increases public awareness of ...

Sarcoma patient performs at Paralympics Ceremony and raises money for Sarcoma UK

03 October 2012: Sarcoma patient performs at Paralympics Ceremony and raises money for Sarcoma UK

A patient treated at the London Sarcoma Service took part in the performance of a lifetime at the Opening Ceremony for the London Paralympics Games. Becki McGuiness was diagnosed with Osteosarcoma ...

RNOH Physhios rasing money for sarcoma

14 September 2012: RNOH Physhios rasing money for sarcoma

Four of the physiotherapists at the Royal National Orthopaedic hospital are running a half marathon on 7th October to raise money for the Bone Cancer Research Trust and raise awareness of Bone Sa...

London Sarcoma Service complete the 5km run for Sarcoma UK

25 June 2012: London Sarcoma Service complete the 5km run for Sarcoma UK

When the idea came that LSS would run 5KM on 24th June to support Sarcoma Awareness week there was concern that the heat may wilt their running efforts.  No need to have worried as some members o...

The new Macmillan Support & Information Service at UCH

01 June 2012: The new Macmillan Support & Information Service at UCH

On the ground floor of the new UCH Macmillan Cancer Centre which opened in April 2012 you will find the Macmillan Support & Information Service, a welcoming and quiet space to feel listened to, un...

23 May 2012: Proton beam therapy coming to UCLH

The government recently announced a large amount of funding to bring proton radiotherapy to the UK. University College London Hospitals (UCLH) will be one of 2 sites delivering this treatment to patie...

Dedicated floor in new cancer centre for teenagers and young audlts

21 May 2012: Dedicated floor in new cancer centre for teenagers and young audlts

We are  very pleased that all young people aged 13 to 24 will now be able to come to the dedicated 3rd floor of the Cancer Centre  at UCH for their outpatient appointments, chemotherapy and ...

Retroperitoneal Sarcoma Audit

18 May 2012: Retroperitoneal Sarcoma Audit

A recent audit carried out by the retroperitoneal sarcoma team at UCLH and RFH has shown excellent outcomes for the service. The team collected data on all retroperitoneal surgery carried out in 2010 ...

08 May 2012: Research at RNOH brings insight into the development of chondrosarcoma, and the development of Ollier disease and Maffucci Syndrome

Pathologists at RNOH identified the first recurrent genetic abnormality (mutations) in cartilaginous tumours. They found that close to 60% of chondrosarcomas have abnormalities in the gene isocit...

08 May 2012: The Consensus and Editorial Meeting of the WHO Classification of Tumours of Soft Tissue and Bone

The Consensus and Editorial Meeting of the WHO Classification of Tumours of Soft Tissue and Bone took place in Zurich last month for 3 days. The new edition of the classification will be pub...

20 April 2012: Abdominal Sarcomas

Since 2010 with the centralisation of Hepato-Pancreato-Biliary and Sarcoma surgery at the Royal Free Hospital this has created one of the leading centres for complex surgery in the UK. Patients w...

11 April 2012: New Referral Forms and Contact Details

For GPs and referring hospitals: Please note that we have recently updated our referral forms which can be downloaded from this website http://www.londonsarcoma.org/referral-if-you-are-a-doctor.a...

UCH Macmillan Cancer Centre now open!

03 April 2012: UCH Macmillan Cancer Centre now open!

The University College Hospital Macmillan Cancer Centre welcomed its first patients on Monday 2nd April 2012, offering the most advanced service of its kind in the UK .  The majority of depart...

University College Hospital Macmillan Cancer Centre

12 March 2012: University College Hospital Macmillan Cancer Centre

The new University College Hospital Macmillan Cancer Centre opens on Monday 2nd April 2012. This brand new, purpose-built facility will redefine cancer care by putting the needs of patients at th...

Sarcoma Radiotherapy Research

20 February 2012: Sarcoma Radiotherapy Research

Radiotherapy is a fundamental part of local therapy in the curative treatment for all types of sarcomas. This is a patient group where radiotherapy has been relatively poorly explored compared to the ...

07 February 2012: London Sarcoma Service top global recruiter for the EURAMOS-1 study

Successful accrual to the EURAMOS-1 study has recently completed: 2260 patients were registered from 18 countries. The UK was the 3 rd largest recruiting country with 298 patients registered, 13% of ...